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Ward, R. & Sandberg, L. J. (Eds.). (2023). Critical Dementia Studies: An Introduction. London: Routledge
Open this publication in new window or tab >>Critical Dementia Studies: An Introduction
2023 (English)Collection (editor) (Refereed)
Place, publisher, year, edition, pages
London: Routledge, 2023. p. 312
Series
Dementia in Critical Dialogue
Keywords
dementia, cognitive ableism, critical theory, queer theory, crip theory, critical gerontology, feminist studies, gender, critical disability studies
National Category
Gender Studies Social Work Social Sciences Interdisciplinary Cultural Studies
Identifiers
urn:nbn:se:sh:diva-51340 (URN)10.4324/9781003221982 (DOI)9781032118802 (ISBN)9781032118833 (ISBN)9781003221982 (ISBN)
Funder
Riksbankens Jubileumsfond, SAB20-0045
Available from: 2023-04-17 Created: 2023-04-17 Last updated: 2023-04-20Bibliographically approved
Sandberg, L. & Holmqvist, S. (2023). “Daring to Be True and to Shine Brightly in the Time That Remains”: Imagining Transgender Ageing in Fredrik Ekelund’s Q. NORA: Nordic Journal of Feminist and Gender Research, 31(3), 292-305
Open this publication in new window or tab >>“Daring to Be True and to Shine Brightly in the Time That Remains”: Imagining Transgender Ageing in Fredrik Ekelund’s Q
2023 (English)In: NORA: Nordic Journal of Feminist and Gender Research, ISSN 0803-8740, E-ISSN 1502-394X, Vol. 31, no 3, p. 292-305Article in journal (Refereed) Published
Abstract [en]

This article explores imaginings of transgender ageing, and more specifically visions of transfeminine ageing futures, through an analysis of the auto-fictional novel Q by Swedish author Fredrik Ekelund. The novel tells the story of Fredrik, who comes out as transvestite at the age of 60, and subsequently struggles to come to terms with and explore their transfeminine identity as Marisol. Overall, cultural representations of lesbian, gay, bisexual, transgender and queer ageing are rare, and often tell tales of misery. As such, Q is a unique example of a complex and relatively positive narrative of transgender ageing. On the one hand, transgender ageing is portrayed as a potential escape from both time and growing old, a form of “rebirth”. On the other hand, failure emerges as a constant threat, including both the failure to perform age-appropriate femininity and failure in the sense of becoming stuck with self-loathing and shame. The protagonist’s struggles to age successfully become intimately connected with pride and standing up for oneself, struggles that are in turn bound to homonationalist discourses of Scandinavian progressiveness and LGBT exceptionalism. 

Place, publisher, year, edition, pages
Taylor & Francis, 2023
Keywords
Ageing, homonationalism, later life, literature, old age, transgender
National Category
Gender Studies
Identifiers
urn:nbn:se:sh:diva-51104 (URN)10.1080/08038740.2023.2171480 (DOI)000925697700001 ()2-s2.0-85147568526 (Scopus ID)
Funder
Swedish Research Council, 2018-00930
Available from: 2023-02-27 Created: 2023-02-27 Last updated: 2023-08-29Bibliographically approved
Sandberg, L. J. & Ward, R. (2023). Introduction: Why critical dementia studies and why now?. In: Richard Ward; Linn J. Sandberg (Ed.), Critical Dementia Studies: An Introduction (pp. 1-12). London: Routledge
Open this publication in new window or tab >>Introduction: Why critical dementia studies and why now?
2023 (English)In: Critical Dementia Studies: An Introduction / [ed] Richard Ward; Linn J. Sandberg, London: Routledge, 2023, p. 1-12Chapter in book (Other academic)
Abstract [en]

This chapter introduces critical dementia studies and gives a brief overview of the chapters and the thinking behind the structure of the volume. The introduction discusses the timeliness of critical dementia studies and the impetus behind the volume. Dementia is commonly understood as a disease category, ahistorical and value-free. Critical dementia studies, however, approaches dementia as a socially produced, political category, open to transformation and social change. Overall, critical dementia studies encompasses a diverse set of approaches that problematise, defamiliarise, denaturalise and destabilise common assumptions and orthodoxies in dementia research, policy and practice.

Place, publisher, year, edition, pages
London: Routledge, 2023
Series
Dementia in Critical Dialogue
National Category
Gender Studies Social Work Social Sciences Interdisciplinary Cultural Studies
Identifiers
urn:nbn:se:sh:diva-51341 (URN)10.4324/9781003221982-1 (DOI)9781032118802 (ISBN)9781032118833 (ISBN)9781003221982 (ISBN)
Funder
Riksbankens Jubileumsfond, SAB20-0045
Available from: 2023-04-18 Created: 2023-04-18 Last updated: 2023-04-20Bibliographically approved
Siverskog, A. & Sandberg, L. (2023). Living with dementia: Experiences Of LGBTQ people with dementia and significant others. Innovation in Aging, 7(S1), 79-79
Open this publication in new window or tab >>Living with dementia: Experiences Of LGBTQ people with dementia and significant others
2023 (English)In: Innovation in Aging, E-ISSN 2399-5300, Vol. 7, no S1, p. 79-79Article in journal, Meeting abstract (Other academic) Published
Place, publisher, year, edition, pages
Oxford University Press, 2023
National Category
Gender Studies
Identifiers
urn:nbn:se:sh:diva-53799 (URN)10.1093/geroni/igad104.0255 (DOI)001178258400251 ()
Available from: 2024-04-05 Created: 2024-04-05 Last updated: 2024-04-05Bibliographically approved
Ward, R. & Sandberg, L. J. (2023). Thinking back and looking ahead: Co-ordinates for critical methodologies in dementia studies. In: Richard Ward; Linn J. Sandberg (Ed.), Critical Dementia Studies: An Introduction (pp. 263-278). London: Routledge
Open this publication in new window or tab >>Thinking back and looking ahead: Co-ordinates for critical methodologies in dementia studies
2023 (English)In: Critical Dementia Studies: An Introduction / [ed] Richard Ward; Linn J. Sandberg, London: Routledge, 2023, p. 263-278Chapter in book (Refereed)
Abstract [en]

In this chapter we set out certain guiding co-ordinates for future critical methodologies for dementia studies and appraise existing approaches through a critical lens. The chapter brings into dialogue the work of two critical commentators and considers the implications of their work for dementia studies. The first, Alison Kafer, has outlined an integrative approach that marries feminist, queer and crip perspectives to propose a political-relational framing of illness and disability. The second, Patti Lather, a feminist ethnographer, has called for a different kind of ethnography, one that works in the ruins of confident social sciences and that embraces uncertainty and unknowing as methodological strengths. We focus particularly upon word-based and spoken methods, raising questions about the status of this type of research data and how it is handled and subsequently communicated. In particular, we seek to disrupt and open to question common assumptions, routines and unmarked aspects of the research process in dementia scholarship. Drawing upon arguments and insights developed in the course of this book, our discussion leads to a call for dementia researchers to bring ourselves closer in to the experiences of people living with dementia while questioning and distancing ourselves from notions of dementia as a fixed and stable category.

Place, publisher, year, edition, pages
London: Routledge, 2023
Series
Dementia in Critical Dialogue
National Category
Gender Studies Social Work Social Sciences Interdisciplinary Cultural Studies
Identifiers
urn:nbn:se:sh:diva-51344 (URN)10.4324/9781003221982-24 (DOI)9781032118802 (ISBN)9781032118833 (ISBN)9781003221982 (ISBN)
Funder
Riksbankens Jubileumsfond, SAB20-0045
Available from: 2023-04-18 Created: 2023-04-18 Last updated: 2023-04-20Bibliographically approved
Sandberg, L. J. (2023). Thinking dementia differently: Dialogues between feminist scholarship and dementia studies. In: Richard Ward; Linn J. Sandberg (Ed.), Critical Dementia Studies: An Introduction (pp. 202-216). London: Routledge
Open this publication in new window or tab >>Thinking dementia differently: Dialogues between feminist scholarship and dementia studies
2023 (English)In: Critical Dementia Studies: An Introduction / [ed] Richard Ward; Linn J. Sandberg, London: Routledge, 2023, p. 202-216Chapter in book (Refereed)
Abstract [en]

This chapter engages in critical dialogues between dementia studies and feminist scholarship. More specifically, the chapter explores how feminist studies can be useful for thinking and rethinking dementia and difference. The chapter engages with two feminist genealogies: feminist difference theory and feminist standpoint theory. Dementia has frequently been conceptualised in terms of negative difference as loss and deterioration, in particular in bio-medical discourse. More recent discourses have in contrast sought to underscore the sameness and normality of people with dementia, but this approach also functions to reinstate people with dementia into cognonormative Western modernist ideals of activity, agency and autonomy. Feminist difference theorists, however, provide ways of thinking affirmative difference. This approach to difference is neither a recourse to pathological difference nor to assimilationist sameness, but enables ways of thinking dementia as lived and embodied difference. The second approach to difference, feminist standpoint theory, concerns the different positionalities of people with dementia. In this argument, people with dementia, in particular those experiencing multiple forms of oppression, are understood as holding epistemic privilege – a particular knowledge of the oppressions of cognitive ableism. The chapter proposes a ‘“demented” standpoint’ as a way of approaching the different and unique knowledge of people with dementia and discusses further how this requires radical rethinking of methodologies in dementia studies.

Place, publisher, year, edition, pages
London: Routledge, 2023
Series
Dementia in Critical Dialogue
National Category
Gender Studies Social Work Social Sciences Interdisciplinary Cultural Studies
Identifiers
urn:nbn:se:sh:diva-51343 (URN)10.4324/9781003221982-20 (DOI)9781032118802 (ISBN)9781032118833 (ISBN)9781003221982 (ISBN)
Funder
Riksbankens Jubileumsfond, SAB20-0045
Available from: 2023-04-18 Created: 2023-04-18 Last updated: 2023-04-20Bibliographically approved
Sandberg, L. (2023). Too late for love?: Sexuality and intimacy in heterosexual couples living with an Alzheimer’s disease diagnosis. Sexual and Relationship Therapy, 38(1), 118-139
Open this publication in new window or tab >>Too late for love?: Sexuality and intimacy in heterosexual couples living with an Alzheimer’s disease diagnosis
2023 (English)In: Sexual and Relationship Therapy, ISSN 1468-1994, E-ISSN 1468-1749, Vol. 38, no 1, p. 118-139Article in journal (Refereed) Published
Abstract [en]

New sexual scripts on later life are emerging, discourses on “sexy oldies” challenge pervasive discourses on asexual old age. Still, sexuality among people with dementia, who are generally older, is rarely affirmed. Research on sexuality and dementia is, moreover, dominated by biomedical accounts that regard sexual and intimate behaviours as expressions of pathology. However, sexuality and intimacy could be significant aspects of later life, also when living with dementia. This qualitative study explores experiences of sexuality and intimacy among heterosexual couples where one partner was diagnosed with Alzheimer’s disease. Interviews were conducted with seven couples, aged 55–87, and both the person with the dementia diagnosis and their partner participated. The findings point to a diversity of experiences, with differences between the older and younger couples. The older couples experienced changes more as a result of embodied ageing, and sexuality and intimacy were experienced as sources of pleasure, comfort and recognition. The younger couples understood changes more as caused by Alzheimer’s disease and experienced a greater loss of intimacy and desire. The study shows how experiences of sexuality and intimacy when living with dementia are shaped by varying sexual scripts and expectations of health in different parts of the life course.

Place, publisher, year, edition, pages
Routledge, 2023
Keywords
Sexuality, ageing, Alzheimer’s disease, dementia, intimacy, later life
National Category
Gender Studies Health Sciences
Identifiers
urn:nbn:se:sh:diva-40614 (URN)10.1080/14681994.2020.1750587 (DOI)000527213800001 ()2-s2.0-85083682687 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2013-00275
Available from: 2020-05-04 Created: 2020-05-04 Last updated: 2023-06-13Bibliographically approved
Lövgren, K., Sandberg, L. & Hearn, J. (2022). Advertising old men: Swedish old men reflect on ‘seeing themselves’. In: Virpi Ylänne (Ed.), Ageing and the Media: International Perspectives (pp. 157-173). Bristol, UK: Policy Press
Open this publication in new window or tab >>Advertising old men: Swedish old men reflect on ‘seeing themselves’
2022 (English)In: Ageing and the Media: International Perspectives / [ed] Virpi Ylänne, Bristol, UK: Policy Press, 2022, p. 157-173Chapter in book (Other academic)
Abstract [en]

Adverts tell a story and comprise images that old men encounter in their everyday lives, and which provide popular scripts on ageing masculinity. This chapter focuses on old men’s own understandings of advertising and their depictions of old men. Focus group interviews with Swedish old men, aged between 65 and 92, were conducted, with commercial adverts featuring old men used as visual prompts to invite discussions on masculinity and ageing. The advertising shown reflects both negative and overtly ageist images, and images of the so-called successfully ageing old man; adverts appealing to identification and aspiration, adverts inciting laughter and appreciation, and adverts creating a sense of resistance or rejection. Different readings of the shown adverts emerged, which point to the polysemic nature of media texts. The chapter discusses prominent themes from the transcribed and coded focus group interviews, on embodied ageing, ageing in different stages of life, masculinity and societal changes in terms of gender equality and the role and status of old men.

Place, publisher, year, edition, pages
Bristol, UK: Policy Press, 2022
National Category
Gender Studies
Identifiers
urn:nbn:se:sh:diva-50306 (URN)10.51952/9781447362067.ch010 (DOI)9781447362067 (ISBN)9781447362036 (ISBN)
Available from: 2022-11-29 Created: 2022-11-29 Last updated: 2022-11-29Bibliographically approved
Sandberg, L., Lövgren, K. & Hearn, J. (2022). Bouncing off Ove: Old men's readings of the novel A Man Called Ove as a cultural representation of ageing masculinity. Journal of Aging Studies, 63, Article ID 101053.
Open this publication in new window or tab >>Bouncing off Ove: Old men's readings of the novel A Man Called Ove as a cultural representation of ageing masculinity
2022 (English)In: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 63, article id 101053Article in journal (Refereed) Published
Abstract [en]

In recent years, there has been a rise in portrayals of greying protagonists in popular fiction, often featuring older people in humorous and heart-warming stories. An emerging genre within this literature is the “geezer and grump lit”, a genre where older people are active protagonists, and while often portrayed as grumpy “’usually turn out to have a heart of gold’” (Swinnen, 2019). A notable example of a book in this genre is the internationally bestselling novel A Man Called Ove (2012) by the Swedish author Fredrik Backman. Telling the story of the 59-year-old Ove who sets out to take his own life, the novel can be understood not only as a cultural representation of ageing, but more specifically a cultural representation of ageing masculinity. But how is this popular novel read and responded to by old men themselves? This article builds on a focus group study with Swedish men aged 65–92 who read and discussed A Man Called Ove. The aim of this article is thus to explore how men read the novel and how these readings function as ways of constructing, negotiating and challenging ageing masculinity and the old man as a gendered and aged position. Findings of the study show how discussion of the novel generated a variety of “imaginary positions” through which the participants made sense of what it means to be an old man in contemporary Sweden, including positions such as the active aspiring ageing man, the passive lonely old man, the embodied and vulnerable old man, and the dutiful old man. Future research should explore how other literary genres may provide ways of understanding how old men's gendered and aged subjectivities are constructed.

Place, publisher, year, edition, pages
Elsevier, 2022
Keywords
Ageing, Imaginary positions, Literature, Masculinity, Old men, Popular literature, Reading, adult, aged, aging, article, female, human, male, middle aged, negotiation, Sweden, Swedish citizen
National Category
General Literature Studies
Identifiers
urn:nbn:se:sh:diva-49621 (URN)10.1016/j.jaging.2022.101053 (DOI)000901813600008 ()36462915 (PubMedID)2-s2.0-85133257256 (Scopus ID)
Available from: 2022-07-21 Created: 2022-07-21 Last updated: 2023-01-27Bibliographically approved
Moberg, C., Wolrath Söderberg, M., Sandberg, L., Lindblad, I., Sjöholm, C., Gullström, M., . . . Stedt, K. (2022). De unga gör helt rätt när de stämmer staten: 1 620 forskare och lärare i forskarvärlden: Vi ställer oss bakom Auroras klimatkrav. Aftonbladet (2022-12-07)
Open this publication in new window or tab >>De unga gör helt rätt när de stämmer staten: 1 620 forskare och lärare i forskarvärlden: Vi ställer oss bakom Auroras klimatkrav
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2022 (Swedish)In: Aftonbladet, no 2022-12-07, p. 2Article in journal, News item (Other (popular science, discussion, etc.)) Published
Abstract [sv]

Vi, 1 620 forskare samt lärare vid universitet och högskolor, är eniga med de unga bakom Auroramålet: De drabbas och riskerar att drabbas allvarligt av klimatkrisen under sin livstid. De klimatåtgärder vi vidtar i närtid avgör deras framtid. Sverige måste ta ansvar och göra sin rättvisa andel av det globala klimatarbetet. 

I strid med Parisavtalet ökar utsläppen av växthusgaser i en takt som gör att 1,5-gradersmålet kan överskridas om några år. De globala effekterna blir allt mer synliga med ständiga temperaturrekord, smältande isar, havshöjning och extremväder som torka, förödande bränder och skyfall med enorma översvämningar, som i Pakistan nyligen. Försörjningen av befolkningen utsätts för allvarliga hot i många länder.

Minskningen av den biologiska mångfalden är extrem. Klimatkrisen är enligt WHO det största hotet mot människors hälsa i hela världen och barn utgör en särskilt sårbar grupp. Med Sveriges nordliga läge sker uppvärmningen här dubbelt så fort som det globala genomsnittet. Det förskjuter utbredningsområden för växtlighet och sjukdomsbärande insekter och ökar förekomsten av extremväder såsom värmeböljor, skogsbränder och översvämningar samt av många olika sorters infektioner och allergier. När extremväder ökar, ökar även stressen och risken för mental ohälsa. Värmeböljor ökar risken för sjukdom och död hos sårbara grupper som äldre, små barn och personer med kroniska sjukdomar. De negativa effekterna på hälsan kommer att öka i takt med klimatkrisen och barn riskerar att drabbas av ackumulerade negativa hälsoeffekter under hela sina liv. Redan i dag är mer än hälften av unga mellan 12 och 18 år i Sverige ganska eller mycket oroliga för klimat och miljö. Detta är förståeligt när våra beslutsfattare inte gör vad som krävs.

Den juridiska och moraliska grunden för arbetet mot klimatförändringarna är att varje land måste göra sin rättvisa andel av det globala klimatarbetet. Centralt i det internationella klimatramverket är att rika länder med höga historiska utsläpp, däribland Sverige, måste gå före resten av världen. Dessa länder måste också bidra till att finansiera klimatomställningen i länderna i det Globala Syd, som är minst ansvariga för klimatkrisen men drabbas hårdast. Denna rättviseprincip är tydlig i Parisavtalet och var en het diskussionsfråga under COP27 i Sharm el-Sheikh, men lyser med sin frånvaro i det svenska klimatarbetet. 

Sverige har satt mål för att minska sina utsläpp. Men de är helt otillräckliga: minskningstakten är för låg och målen tillåter samtidigt att åtgärder skjuts på framtiden. Dessutom exkluderas merparten av Sveriges utsläpp från de svenska nationella utsläppsmålen; bland annat utelämnas utsläpp som svensk konsumtion orsakar utanför Sveriges gränser, utsläpp från utrikes transporter och utsläpp från markanvändning och skogsbruk, exempelvis utsläpp från förbränning av biobränslen eller utsläpp från dikade våtmarker (Prop. 2016/17:146 s.25-28).

Sverige saknar dessutom ett eget mål för att öka upptaget av växthusgaser genom utökat skydd och restaurering av ekosystem, något som krävs för att begränsa de värsta konsekvenserna av klimatkrisen (IPCC s.32). Trots dessa låga ambitioner misslyckas Sverige med att nå sina utsläppsmål, konstaterar både Klimatpolitiska rådet och Naturvårdsverket. En klimatpolitik i linje med Parisavtalet kräver både att alla typer av växthusgasutsläpp minskar samtidigt som – inte i stället för – upptaget av växthusgaser maximeras: i dag misslyckas Sverige på bägge fronter.

Slutsatsen är tydlig. Sverige vidtar inte de åtgärder som krävs för att skydda barns och ungdomars rättigheter enligt Europakonventionen till skydd för de mänskliga rättigheterna. Detta medför allvarliga risker för liv och hälsa för unga generationer, människor i andra länder och särskilt utsatta grupper. Detta kan inte fortsätta. Därför ställer vi oss bakom Auroras krav att Sverige börjar göra sin rättvisa andel och omedelbart sätter igång ett omfattande och långtgående klimatarbete som vilar på vetenskaplig grund och sätter rättvisa i centrum.

Place, publisher, year, edition, pages
Aftonbladet, 2022. p. 2
Keywords
Klimatförändringar; växthusgaser; mänskliga rättigheter
National Category
Law and Society
Identifiers
urn:nbn:se:sh:diva-50340 (URN)
Note

Aftonbladet Debatt

Available from: 2022-12-07 Created: 2022-12-07 Last updated: 2023-10-06Bibliographically approved
Projects
Alzheimer´s Disease, Intimacy and Sexuality: a study of Dementia and the Intimate relationship [2013-00275_Forte]; Södertörn University; Publications
Sandberg, L. (2023). Too late for love?: Sexuality and intimacy in heterosexual couples living with an Alzheimer’s disease diagnosis. Sexual and Relationship Therapy, 38(1), 118-139Sandberg, L. (2018). Dementia and the gender trouble?: Theorising dementia, gendered subjectivity and embodiment. Journal of Aging Studies, 45, 25-31
MASCAGE Gendering Age: Representations of Masculinities and Ageing in Contemporary European Literatures and Cinemas [2018-00930_VR]; Södertörn UniversityCritical dementia studies: alliances, resistances and dialogues [SAB20-0045_RJ]; Södertörn University; Publications
Ward, R. & Sandberg, L. J. (Eds.). (2023). Critical Dementia Studies: An Introduction. London: RoutledgeSandberg, L. J. & Ward, R. (2023). Introduction: Why critical dementia studies and why now?. In: Richard Ward; Linn J. Sandberg (Ed.), Critical Dementia Studies: An Introduction (pp. 1-12). London: RoutledgeWard, R. & Sandberg, L. J. (2023). Thinking back and looking ahead: Co-ordinates for critical methodologies in dementia studies. In: Richard Ward; Linn J. Sandberg (Ed.), Critical Dementia Studies: An Introduction (pp. 263-278). London: RoutledgeSandberg, L. J. (2023). Thinking dementia differently: Dialogues between feminist scholarship and dementia studies. In: Richard Ward; Linn J. Sandberg (Ed.), Critical Dementia Studies: An Introduction (pp. 202-216). London: Routledge
LGBTQ and dementia in policy and practice in Swedish dementia care [2021-01979_Forte]; Södertörn UniversityImagining Queer Aging Futures : a study of LGBTQ aging in Estonia, Poland and Sweden [22-PR2-0015_OS]; Södertörn University
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-5235-6111

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