Open this publication in new window or tab >>Show others...
2025 (English)In: Abstract Book: ECTRIMS 2025, Sage Publications, 2025, Vol. 31, no 3 suppl, p. 1294-1294, article id P1847Conference paper, Poster (with or without abstract) (Other academic)
Abstract [en]
Introduction: Having a chronic disease such as multiple sclerosis (MS) may pose challenges for affected individuals in their working life. Given its progressive nature and wide range of symptoms, living with MS requires ongoing adaptation, adding an extra layer of complexity in balancing professional responsibilities. In addition to work accommodations and support, individuals may develop their own strategies to manage their condition at work.
Objectives/Aims: To explore the experiences of people with MS (PwMS) in managing MS in the workplace, focusing on the strategies they employ to facilitate their work lives and the challenges they navigate.
Methods: Semi-structured individual interviews were held with 16 working PwMS in Sweden. Interviews were analysed using reflexive thematic analysis.
Results: Three main themes were identified that highlight strategies for managing MS. The first theme, ‘Adapting to MS’, included statements on how critical self-reflection led to strategies more aligned with health needs and understanding the best practices and pitfalls of managing a chronic disease. The second, ‘Taking responsibility in the workplace’, described the participants’ commitment to protecting their health at work, and the efforts made to create an environment more conducive to their condition. Finally, ‘Approaching sustainability’ included reports on making sustainable choices in relation to their work life, both in the short and long term.
Conclusion: This study provides insights into the experiences of those living and working with MS. The results demonstrate the active agency in managing their condition. The PwMS employed various strategies, concentrating on adapting to MS mentally and practically, taking an active stance for their health, and making choices based not only on their current health status but also on potential future circumstances.
Disclosure of interest: JD has previously been partly funded by unrestricted research grants from Biogen and Celgene/BMS. AM has previously been partly funded by unrestricted research grants from Biogen and Celgene/BMS. KAM has received speaker honoraria from Biogen and Sanofi-Aventis. EF has previously been partly funded by an unrestricted research grant from Biogen, and has received unrestricted research grants from Celgene as well as speaker fees from Merck and Sanofi. AWL: nothing to disclose. VS: nothing to disclose.
Place, publisher, year, edition, pages
Sage Publications, 2025
Series
Multiple Sclerosis Journal, E-ISSN 1477-0970 ; Volume 31, Issue 3_suppl
National Category
Health Sciences
Identifiers
urn:nbn:se:sh:diva-58722 (URN)10.1177/13524585251358343 (DOI)001603659904137 ()
Conference
41st Congress of the European Committee for Treatment and Research in Multiple Sclerosis, 24-26 September 2025, Barcelone, Spain
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
2025-12-222025-12-222026-01-22Bibliographically approved