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En "medborgerlig" patientrörelse: Samhällssyn och maktkritik hos den svenska THX-rörelsen under 1970-talets andra hälft
Södertörn University, School of Historical and Contemporary Studies, History of Ideas.
2018 (English)In: Scandia, ISSN 0036-5483, Vol. 84, no 1, p. 36-60Article in journal (Refereed) Published
Abstract [en]

Since the 1990s, historians of medicine have pointed to a change in the status and self-image of patients in the West. Patients, it is claimed, have gone from being passively dependent on medicine to active consumers of health care. However, this narrative does not consider the fact that Western countries differ a great deal in terms of access to health care, access to alternative treatments and the role and status assigned to formal expertise in society at large. This study aims to contribute to a deeper and more historically nuanced understanding of the transformation of the patient into a consumer. Through an analysis of the Swedish THX movement - a patient movement trying to achieve legal access to, and formal approval of, the controversial anti-cancer drug THX in the 1970s - the study shows how the agenda and demands of the THX patients mirrored the specific Swedish settings in which they were articulated. THX patients did not wish to be regarded as consumers or clients. On the contrary, their arguments were firmly rooted in a collective identity as "the people" who expected the state and politicians to meet their needs. They emphasized their collective experience as evidence of the efficiency of THX and pointed to the popularity of THX treatment, thereby rejecting the results of several scientific trials initiated by the medical authorities. Doing so, THX patients made use of the culturally resonant frame of collectivity in Sweden at the time, as well as of a widespread belief that the medical authorities were corrupt and insensitive to the needs of ordinary people.

Place, publisher, year, edition, pages
2018. Vol. 84, no 1, p. 36-60
Keywords [en]
Patient advocacy, health movements, history of medicine, post-war, Sweden, history of science
National Category
History of Ideas
Identifiers
URN: urn:nbn:se:sh:diva-35761ISI: 000435168700003Scopus ID: 2-s2.0-85048636746OAI: oai:DiVA.org:sh-35761DiVA, id: diva2:1228379
Projects
Medicin, makt och motstånd: THX-konflikten och svenskt-tyskt utbyte under efterkrigstiden
Funder
The Foundation for Baltic and East European Studies, 22/2016Available from: 2018-06-28 Created: 2018-06-28 Last updated: 2018-07-05Bibliographically approved

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Josephson, Maria

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
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  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
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  • asciidoc
  • rtf