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Defending human rights in the era of datafication
Uppsala University, Sweden.
Södertörn University, School of Natural Sciences, Technology and Environmental Studies, Media Technology.ORCID iD: 0000-0002-5962-1536
Södertörn University, School of Natural Sciences, Technology and Environmental Studies, Media Technology.ORCID iD: 0000-0001-5110-6882
2023 (English)In: AoIR Selected Papers of Internet Research, The Association of Internet Researchers , 2023Conference paper, Published paper (Refereed)
Abstract [en]

In this paper, we explore how activists and human rights defenders deal with datafication. This work demonstrates how data can be a valuable resource in activism and campaign planning. In addition, data and lack of data also complicate daily life for people in vulnerable positions, for example, when contacting government agencies, schools, and medical facilities . Data from four types of human rights activism formed the basis of our analysis. They include volunteers and employees of NGOs dealing with refugee and migrant issues, homelessness, poverty, sexual minorities, and women's shelters. The study was done in Sweden, where the GDPR (General Data Protection Regulation) laws limit the handling and storage of personal data. The following five major themes emerge from the analysis of data from our interview study: Affording personal integrity, Data poverty, Protective data practices, Drawing attention to data, and Systems and data routines. In addition, this study shows how activists and the organizations that they support are exposed to contradictory aspects of data; on one hand, deliberately exposing data about marginalized/minoritized groups, while on the other, making sure those groups, along with activists themselves, are not exposed. Most important, the data laws and regulations are not adjusted to the needs of the most vulnerable in society, and therefore, actions of civil disobedience are necessary to care for vulnerable populations through data.

Place, publisher, year, edition, pages
The Association of Internet Researchers , 2023.
Series
AoIR Selected Papers of Internet Research, E-ISSN 2162-3317 ; 2023
National Category
Media Engineering
Identifiers
URN: urn:nbn:se:sh:diva-53704DOI: 10.5210/spir.v2023i0.13473OAI: oai:DiVA.org:sh-53704DiVA, id: diva2:1845464
Conference
AoIR2023: The 24th Annual Conference of the Association of Internet Researchers Philadelphia, PA, USA, October 18-21, 2023.
Available from: 2024-03-19 Created: 2024-03-19 Last updated: 2024-03-19Bibliographically approved

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Normark, MariaHansson, KarinJacobsson, Mattias

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CiteExportLink to record
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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • harvard-anglia-ruskin-university
  • apa-old-doi-prefix.csl
  • sodertorns-hogskola-harvard.csl
  • sodertorns-hogskola-oxford.csl
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
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Output format
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